Raising a Special Needs Child

I thought for something quite different I’d give an insight on what it’s been like for us to raise a child with special needs. We are very blessed because Liz has a mild disability so I don’t know what it’s like to have a child in the severe category but I figure we all go through the same emotions and similar challenges.

When Liz was born on December 31st 1989 we had no idea of the journey ahead of us. She was your typical baby and loved being handled by people. She crawled at 11 months, walked at 12. She got out of day and night nappies when she was just over 3, thanks to her Aunty Celline who had her for that week. But she didn’t speak. As she got older she didn’t like physical touch.

At 3 when the adventures begin.

At 3 when the adventures begin.

I always had this dream of walking with my daughter, holding her hand and enjoying hanging out. I had to wait 16 years for that to happen.

Liz was just over the age of 3 and I noticed there was something ‘different’ about her. Her speech hadn’t developed beyond one word answers. Her younger sister was more advanced than her in many ways and she is 16 months younger. Liz didn’t want to be cuddled and was happy just to go through life at a slower pace. I tried to give Pete hints that I thought something might be not right and he just shook it off. When he was young Pete struggled academically, had some home challenges and is severely dyslexic. No way did his daughter have any issues!

Pete and I went to India for 3 weeks while the girls stayed with my sister. Unfortunately they both got chickenpox so she was very happy to hand them back at the end of it all! It was then that our pastors approached us and said we should get Liz checked out as she wasn’t at the same level as her peers. So off to our GP we went.

One of my most favourite shots of Liz.

One of my most favourite shots of Liz.

He put us on to Jeanette Van Der Wal, a speech therapist. She was at the same therapy centre that Pete went to when he was a kid.

Liz started speech therapy with Jeanette pretty much straight after visiting our doctor. Her first goal was to put 2 words together.

Two.

Our lives have never been the same since.

For the next few years there were visits to child psychologists, occupational therapists, speech therapists, blood tests, tests for her mental status and surgery. There’s the interdisciplinary report, Fragile X testing, the CELF-3 test, the non-verbal assessment etc. Every time you walk away feeling drained and that it’s your fault. There’s a whole new language you have to learn to be in synch with what the specialists are saying.

This kid has traveled the world.

This kid has traveled the world.

We were always being asked for descriptions of the pregnancy, the birth, her milestones and her sleeping patterns. Liz went through so many tests over the years she knew how to do them by rote. I remember once she said she had already done a particular one and wasn’t prepared to do it again.

She’s one smart cookie.

No one ever labeled Liz, especially Jeanette. She didn’t want Liz to be put into a box because we would lower our expectations. It was the best thing she ever did and we are forever grateful. If we knew of Lizzies label earlier we probably would’ve gone soft on her. Instead we treated her as normal as her sister.

In some ways she got extras like going to Riding For The Disabled. It is a brilliant setup and Lyn who still runs it to this day helped build confidence in Liz. She taught Liz sign language and didn’t let her cut corners. To this day, Liz is great with horses.

She might live in the city but she's a country kid at heart. And has no fashion sense.

She might live in the city but she’s a country kid at heart. And has no fashion sense.

One day a specialist just let it roll off his tongue that Liz was considered mentally disabled but in the mild region. We were devastated as we’d never thought of her in that way. We had a disabled child.

So – we went back to Jeanette. I remember her saying that was the reason why she never labeled Liz, because we would see her differently.

But Liz is different.

She can’t spell for peanuts, her speech gets unclear, her co-ordination leaves a lot to be desired and she just doesn’t get social cues, which are so embarassing. There’s things she had to learn to do – like buttons. Liz was 16 before she could do up her laces.

Don McDonell, one of Lizzies heroes. He always sees the best in her.

Don McDonell, one of Lizzies heroes. He always sees the best in her.

People made huge judgment calls as to why she was the way she was.

That’s a hard one. Super spiritual people tried to cast demons out of her, some said it was because we were ‘too busy serving the Lord’, others were just jerks. In the Church the answer was ‘just pray and God would fix it’. What if God doesn’t see anything wrong with someone having a few extra needs, after all, we’ve all got them?

Being different is okay, that is until you realize you’re different.

It wasn’t until she was in her late teens she understood how different she was. Her sister had lots of friends, was a main vocalist at youth group and held an after school job. Liz felt she was a nobody – invisible. And she was right, because nobody wants to give someone different a chance. They make us feel uncomfortable because they’re not ‘normal’. There was a time that I could see a bit of her dying on the inside day by day. She started emotionally shutting down, actually I saw her getting depressed.

On the day Liz became a deacon at church.

On the day Liz became a deacon at church.

And then there was the change.

Pete talked with Kerry Robertson, one of the youth pastors and explained the situation. Just one person can make a change and it was Kerry who did it for Liz. He asked her to be a photographer at their events. Liz became a new person. She wanted to go to youth group, she became very good at taking photos. Even now she gets unique perspectives when photographing.

Remember, this is a kid who was told of all the things she couldn’t do. Couldn’t play sport – she plays hockey and soccer. She couldn’t do anything with fine motor skills – she loves to play the drums. She shouldn’t be able to hold a camera long enough to get good photos – yet she does. She couldn’t hold a fulltime job – but she does. Okay, she volunteers at a preschool, but it still counts.

She joined the serving team at church and was the youngest deacon ever to be allowed. She found her place of belonging. She inherited a small team of people that treated her as a human being.

At her farewell. Liz served on this team for 10 years.

At her farewell. Liz served on this team for 10 years.

Yes, Liz has a mild mental disability. She is dyslexic and her speech is not clear. Liz exhibits all the signs of having Apsergers Syndrome, so that’s what we say to people. We never say ‘she has a mental disability’. Considering we only use a small portion of our brains, I figure we all have a way to go to getting to our potential.

But she is a great kid with the best personality.

Both our girls graduated from high school - something their parents didn't do.

Both our girls graduated from high school – something their parents didn’t do.

I’m the first to admit that it hasn’t been an easy journey. Did I do something wrong during pregnancy, is it genetic? The nagging questions don’t go away because sometimes there isn’t any easy answer.

Looking back now I wish I had handled Lizzies schooling better. She wasn’t ready to learn at 5, 6 or 7. Liz was ready at about 8 years of age, but of course I felt pressured by society to ‘make this girl learn’. Liz doesn’t learn from a book, she learns from experience. It takes her a long time to get the information from short term to the long term memory, unless it’s an experience. We call her our human GPS.

Liz is so generous, she paid our flights to the US for our final family holiday.

Liz is so generous, she paid our flights to the US for our final family holiday.

Liz likes having a routine, she struggles when there are changes – big time. Now, she can fly back to Australia but she HAS to have an excel sheet with every detail of her trip. Every day her routine is pretty much the same.

And yet, she’s up for an adventure. Every day she goes to work on a motorbike (as a passenger). When we talked about going to South Sudan or spending a year driving around Africa – she was in for it.

Liz is now 25. I can’t imagine what she would be like if she were ‘normal’ because she is the way we’ve always known her. Liz will always be dependent on someone to help her through life. We don’t think she’ll ever live independently, she will always need support. We’ve had to make backup plans if something happens to us here in Africa. We’ve got friends that will oversee the selling of things and getting her back to my sister in New Zealand. Liz is hopeless with money and doesn’t understand the value of it. That’s why I control her bank account. Although she’s 25 in many ways she behaves like a person in their early teens.

Our children, the best investment we've ever made.

Our children, the best investment we’ve ever made.

Life is not easy for Liz, but her amazing attitude gets her a long way. Most people know ‘there’s something not right’ about her but can’t quite put their finger on it.

Liz is different and I’m glad she is who she is.

I’m also glad she got to grow up in New Zealand with the great services they have there. Unfortunately, here in Kenya there’s not a lot for special needs kids, unless you have a lot of money. I’ve taken what we’ve learned with Liz and will help as many kids as possible over here. Kenya has a long way to go in its services for disabled people and I would say it’s the same across East Africa.

I hope I can help kids and their families in the same way we were helped and with the same compassion and grace we were given.

Here is Lizzies first speech therapy workbook.

Here is Lizzies first speech therapy workbook.

Thank you to the people who have done life with us and Liz – you’re amazing.

And thank you Liz for teaching us patience, forgiveness, grace, long suffering but most of all how to rejoice. I remember the day you first said the three most important words ‘I love you’. I was hanging out the laundry and you were playing in your garden. It’s burned in my memory forever.

Now that’s priceless.

3 creanies

Just Get Lost!

We’ve been very blessed to be able to do a lot of travel as individuals, a family and in a group. Every trip has its challenges and triumphs. Living in Kenya enables us to see amazing wildlife and scenery within a few hours.

Travelling with a large group complicates things and I thought I’d share a few pointers on it.

Most of our first team to Africa. It was fun/interesting.

Most of our first team to Africa. It was fun/interesting

Group dynamics become evident in a very short time. There’s the loud person who is sure they know the way (but not really) and enforces their viewpoint. There’s the quiet one who goes with the flow. In between you’ll have a whole range of people who try to be heard, get frustrated when they feel no one listens to them, and those that verbally let everyone what they think. The more people you have, the more variables in behavior.

I remember when the four of us and one extra went to Hawaii for a conference. The plan afterwards was to go to the volcano national park. It was the one thing I insisted on as I’ve a weird fascination with volcanoes, natural disasters such as tsunamis and the like. This trip was doable because we had sold our house in New Zealand and I thought we might not get this opportunity ever again. What I hadn’t counted on was 5 sleepless nights because one of the crew snored loudly, and I mean earth shaking snoring. I even threw pillows at her and told her to shut up. She didn’t notice a thing.

I did get to see the volcanoes and 10 years later we're still married.

I did get to see the volcanoes and 10 years later we’re still married

By the time the conference had finished we were really tired. It had been a full on week and the five of us were ready for a break. First, we missed our connecting flight to one of the islands. Then, I lost the plot and nearly divorced my husband because I wanted things done my way to get going on our ‘holiday’. I got so cranky that I walked out of the pancake place and was heading for my passport at the hotel. It all came down to tiredness. Three teenage girls and tired adults don’t always mix either.

Building memories

Building memories

Mixed ages can cause other problems too. If you have a group that might have pre-schoolers, teenagers and adults from different families, it can bring conflict. Teenagers are likely to want to just shop, adults hang by the pool and pre-schoolers just want to play on the outside equipment. Phones don’t always work in other countries, people don’t listen when it comes to meetup points and little kids can’t handle the long hours often required.

We went to Disneyland in LA one year. One of the family (who will remain nameless) was prepared to stand in line for 3 hours just to go on the Cars ride. The rest of us weren’t and wanted to go on other rides. It was his turn to lose the plot. Again, a mixture of jetlag, tiredness and disappointment.

Liz building a car at Disneyland

Liz building a car at Disneyland

To go in a large group, you really have to be selfless.

I guess we’re not there yet.

We wanted to spend a year travelling around Australia just for the heck of it. Our youngest daughter gets car sick and she was prepared to divorce us for even considering it. She’s married now, so we’re going to drive around Africa instead.

I’m a Type A person. I like to cross my T’s and dot my I’s, but living in Kenya I’ve had to learn to be much more flexible. I’ve learnt that when you’re on the road you may just have to give up trying to do everything and enjoy what you can see/do. Too many times we also try and fit too many things into a schedule and when we don’t get to do them, we get disappointed.

Sometimes, it’s also good just to get lost. That way you end up having adventures you would never had encountered.

Pete broke his leg on Mt Kilimanjaro. This is in Dubai on the way home. It's 43 degrees. Not planned, but it made thing interesting.

Pete broke his leg on Mt Kilimanjaro. This is in Dubai on the way home. It’s 43 degrees. Not planned, but it made things interesting.

In 2009 I did my first trip to New York City. I was by myself and for the most part it was for work. However, I always try and fit in some fun things to do. The people I was with weren’t very hospitable and pretty much left me to my own devices. One night I caught a train from Queens into Manhattan to meet a board member and his son for dinner. It was quite late when we finished and they insisted I get a taxi back to Queens. I was just thinking of the few dollars in my pocket and was very vocal about catching the train back. They were insistent and so was I. Remember, I was jetlagged and in a new city. I went to the train station to find the gate locked. I couldn’t find another entrance and then had to walk lots of blocks to find the right line. I jumped on a train but it became obvious I was heading in the wrong direction. Meantime I’m getting text messages from our board member wondering if I was in Queens yet. I get off the Harlem bound train and a nice old lady pointed me to the right one. I get off at Queens but then can’t remember how to get to the house. I start praying madly (it’s amazing how spiritual we get during a crisis) and looking for a familiar building. Thankfully, I eventually found it and of course never told anyone about by short visit to Harlem in the middle of the night.

Our plan was to go to New Zealand in 2015. Instead we went for our daughters wedding in 2014. Some things are out of your control, but you can have lots of fun anyway.

Our plan was to go to New Zealand in 2015. Instead we went for our daughters wedding in 2014. Some things are out of your control, but you can have lots of fun anyway. We did!

With all the crappola that goes on in our world, I’ve found people are pretty good at helping out in a time of need. The problem when you’re lost is that they’re not and they know how to get there but don’t always have the ability to communicate it. By the time you’ve got to the 5th turn, you’ll be lost all over again. Getting lost is okay until that goes on for hours on end.

When we first moved to Sydney, Australia, we had to meet up on the other side of the city with some friends to pick up a suitcase. Evan insisted on coming to our place, but we really wanted to see what their part of the world looked like. This was pre-GPS days. I don’t know how many hours later we got there, because Ev came and got us, but 13 years later he still gives us stick about it.

Golden Rules of Travel:

  1. Don’t book anything on the day you arrive – we’ve missed lots of appointments by breaking this rule
  2. Do one thing in a day – it should be fun not a marathon to get around
  3. Mix things up in your schedule – one day sight seeing, one day shopping, something in the morning, another day something at night
  4. Before you go, ask the group what one thing they want to do/see and make it happen (I’ve never got to the Statue of Liberty because of the weather, but one day…)
  5. Remember the world is big place – it takes more than 5 minutes to get from A to B
  6. Know where the toilets are
  7. Know and obey the local laws
  8. Make happy memories not disastrous ones.

So go ahead, travel and get lost. It doesn’t matter if it doesn’t pan out like you thought – isn’t that life? You will meet incredible people, see amazing things and experience life changing events. You’re not going to get that while at home

Our 2012 guide to Kilimanjaro was the same as 2011. We wouldn't have known how good he was if Pete didn't have his accident. We are lifelong friends now.

Our 2012 guide to Kilimanjaro was the same as 2011. We wouldn’t have known how good he was if Pete didn’t have his accident. We are lifelong friends now.

Twenty years from now you will be more disappointed by the things you didn’t do than by the ones you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sails. Explore. Dream. Discover. Mark Twain

The world is a book and those who do not travel read only one page. Augustine of Hippo

Go see the world, your adventures await you!

Go see the world, your adventures await you!

How We Travelled With No Money For Two Months

We’ve just done an 8 week trip away from Kenya, travelling through Dubai, Mumbai, Singapore, Australia and New Zealand. In this blog I’ll be telling you how we did it with no money. For us it was a total trip of faith – that’s how we hang. If you’re not a Jesus follower, read the blog anyway with an open mind because it’s not something we can invent.

A bit different to how we look in Kenya.

A bit different to how we look in Kenya.

Hannah, our youngest was getting married on December 19th in NZ. Of course it’s something we wouldn’t/couldn’t miss, but we had no idea how we were going to do it. Our budget for living in Nairobi should be $3,500 a month, we get in around $2,000.

Hannah really looked stunning.

Hannah really looked stunning.

Until this year Liz has been getting in just under $800 on the disability pension from Australia. We knew it would be stopping in January. Each month we would use a couple of hundred dollars to put towards the budget. We didn’t like it, but the cost of living in Kenya is sky rocketing.

Hannah and Luke. The reason we took this trip.

Hannah and Luke. The reason we took this trip.

I remember complaining to God (He’s got big shoulders) saying I was over dipping into Lizzies pension money and He could find another way to find $5,000 to fly us home. She didn’t have enough in her account anyway but I wasn’t about to take any more.

In Auckland we stayed at my cousins - Jeff & Jeanettes.

In Auckland we stayed at my cousins – Jeff & Jeanette.

One Saturday we had a youth leaders meeting at our house. These are kids who run the child sponsorship monthly meeting, they also take about 90 minutes to get from the Kibera Slum to our place – many times they walk some of the way. We feed them lunch and then we do a bit of training. This day at the end we asked who had prayer requests. Some needed school fee money, others jobs, others provision – we needed 500,000 shillings. Remember, most of these kids live on 200 shillings a day.

Mathew, the leader prayed for us and for the wedding. This was on the Saturday.

On the Monday I’m in a meeting that is dragging on a bit so I check my emails on my phone and there’s a notification from a small church (The Embassy) in Sydney that supports us a small amount per month, instead it says there’s $2,000 this month. My heart skipped a beat and then I thought ‘maybe it’s meant to be $200 because we’ve been overpaid before, but $200 is awesome’. I send a Facebook message to someone in the know and leave it. The next day I get a reply that yes indeed, they decided to bless us with extra. I remember writing ‘thanks, you’ve just paid my flight home to my daughters’ wedding’.

Liz came with us to every meeting, sometimes 4 a day.

Liz came with us to every meeting, sometimes 4 a day.

On the Wednesday I emailed some friends who gave us $1,200 earlier in the year when we thought Pete’s dad was dying. We kept it aside for ‘the day’, which didn’t happen. They said we could use it for whatever. The same day, someone emailed me and asked how short we were for our flights home, I said $800. They said it would be in our account that day.

Ross & Ros are our faith partners in what we do.

Ross & Ros are our faith partners in what we do.

Within 4 days, God had heard the prayers of others and my whinging and supplied money for flights. Sure, we hop scotched around the globe on super cheap flights, but we did it.

So, we had our return flights sorted but that was it.

We saw the ocean from time to time but didn't play in it much.

We saw the ocean from time to time but didn’t play in it much.

When we got to NZ we had free accommodation at my cousins house and then our future in-laws lent us the ‘windy’ a super little car that kept going and going. However, that was it.

We flew in on the Friday and the next day we started our ‘furlough’. This is when you leave your work back on the field and spend endless days and nights visiting your current and potential supporters. Somewhere in the 2 months you’re meant to take a break – not something we achieved.

Evan and Moira used to pastor the church that supports us. This was before they went to NYC and us back to Kenya.

Evan and Moira used to pastor the church that supports us. This was before they went to NYC and us back to Kenya.

The plan was to be in Auckland with Hannah on the weekends and travel on the weeks. The week leading up to the wedding would be totally spent in Auckland.

That first Saturday we go and see some friends who we got to meet when they hosted us for a youth conference – 21 years ago. They gave us some money for ‘incidentals’ – for us that meant wedding clothes. We had nothing to wear to the wedding of the year. So that was provided for.

On our way around NZ we stopped in Waihi where Pete's family came from. This is the area being mined.

On our way around NZ we stopped in Waihi where Pete’s family came from. This is the area being mined.

Everywhere we went people fed us (a lot) whether that be at a café or in their homes – and they paid for it all. There were very few times we had to pay for anything, which was great because eating out in NZ is really expensive. There were times people gave us envelopes of cash, put money into our bank account or went out and bought us things.

Pete’s a country boy at heart. He milked cows a couple of mornings while we were staying with some friends on a farm. He loved it and it was the closest to getting a break. Not because he had helped with milking but because of the generosity of our friends, they gave us a fuel card to use for the next month. That meant all of our petrol costs were covered. Just as well because we ended up doing 3,000 kilometres in that time.

Pete milking cows in Cambridge.

Pete milking cows in Cambridge.

One of the things we kept praying for was $5,000 to give towards the wedding costs. It never came through. We felt really bad that we could contribute hardly anything. One thing we wanted to do was give our kids the deposit for a house when they got married. Going to serve in Africa killed that one. Sure, we pulled together some funds for a few homewares, wedding props and something towards the photographers, but it never felt enough. We have short term borders at our home and we managed to save that, but it wasn’t just the same.

So while we were super blessed to have our costs covered, this one thing never came through. I don’t know why but it is what it is.

One thing I did notice is that people who sacrificially give to us each month, went overboard in looking after us. Generosity is not just an action, it’s a part of a persons’ character. It was the same people who give to us, kept giving whether it was cash, cheques, petrol cards or gas vouchers. We especially noticed it in New Zealand because we were there for a month.

Uncle Bob knew Liz when she was just a toddler.

Uncle Bob knew Liz when she was just a toddler.

However, it wasn’t much different in Aussie. We had a friends’ house and car to use – for free. Sometimes we had 4 meetings a day. It was exhausting but good at the same time. Considering we weren’t meant to come back until June this year, we managed to fit in a lot. Again, people would just give us a blessing of cash, which was very cool.

Singapore was hot, humid and lots of fun.

Singapore was hot, humid and lots of fun.

I remember being there for a few days and we were in the car, Pete said “Well God, when’s it going to come through again?” The funds had dried up and this time we had to pay for petrol. That very same day someone gave us a few hundred dollars. It paid not only for our fuel but the hire car we needed for a couple of days at the end.

Last but not least, we needed $600 for travel insurance. Insurance isn’t one thing you can do without when you’re abroad, it’s not worth the risk. We hadn’t been insured for a couple of months and it’s not a nice feeling. In our last few days in Aussie, two people gave us cash which covered the whole amount. That will keep us going for 6 months and then we’ll get a 12 month policy in July.

No, we didn't go tenting.

No, we didn’t go tenting.

No, we never stayed in hotels (except a cheapy in Dubai on the way), we slept in lots (11) different beds. We caught 14 different flights. We spent endless hours in airports. We visited the beach 4 times in 2 months, the most spent was an hour.

Our ‘holiday’ was the day and a half with my cousins in Singapore but besides that it was head down and butt up.

There are two things this trip proved to me:

  • Nothing is a surprise for God, He knows what we need/want
  • Generous people are always generous, it’s who they are

Now we’re home and we, like you, have to keep believing God for more. In 5 weeks we move apartments to save money. It’s another opportunity to see what He will do for His kids.

Thank you to everyone who gave us a bed, meals, petrol, cars, flights, clothes, tools, coffees and more. You are not forgotten. You are appreciated and loved.

My friend Cath is part of our intercessors team.

My friend Cath is part of our intercessors team.

Being Home

We’ve been back in Nairobi for 5 days after being away for 2 months. Next week I’ll write about how we managed to do that trip, but this week I thought I’d focus on what it’s like being home.

After 2 years of settling in Nairobi, it really is home. When we were away we felt we didn’t fit in anywhere. Here, things are familiar and to some extent comfortable. You don’t have to explain the challenges of living here to people who don’t understand, no matter how you tell them. No words can describe the sights, sound and smell of Nairobi.

In 8 weeks we had 3 days 'holiday'

In 8 weeks we had 3 days ‘holiday’

It’s nice not to have to live out of a suitcase. We went with 2, picked up another one in Sydney (marketing material) and came back with 6. Yes, 6 suitcases. They were filled with clothes and tools for the next 2 years of work. Most of the time we travelled from town to town with just one big suitcase and a small one. Now I am overwhelmed at how much ‘stuff’ we actually have in our apartment. We’ve spent months travelling with the basics. We got into a routine and we loved it. Now all I see is the things at home that need dusting. Some of the belongings I wonder why we have them. Why did I spend money on certain things? I am sure I will adjust but right now I’m kind of craving the simple life.

I haven’t cooked for over 2 months. We were so spoilt when we were away and now I actually have to find food for the family. I had really hoped to buy a BBQ but didn’t have the weight allowance. We love barbecues, there’s nothing like it. When we lived in Sydney we pretty much had them every night. Before we left there was just Liz and I because Pete was in Ethiopia, so we used whatever we had in the house. When we returned our cupboards were literally bare. Thankfully, our friends who had borrowed our car got us some food for a couple of days. We’ve gone through three shopping lists in as many days, as we figure out what we need and don’t have. We are reminded how convenient it was back in Australia where everything you needed was in the supermarket at the same time. Here, it’s pot luck. Pete’s not a happy camper because he can’t get the peanut butter brand he likes. I think he will survive.

Pavlova - the reason we got fat

Pavlova – the reason we got fat

I haven’t driven since coming back. Not that I don’t want to, but I haven’t needed to. Today is our first ‘official’ day back at work, so Pete has been home. The traffic hasn’t changed. The car needs some engine work on it and Pete’s motorbike comes out of the garage after taking 3 months to get it fixed. We are reminded once more to forget going on the roads after 4pm as it’s just gridlocked. I’m saving myself the pain of a 90 minute drive into town tomorrow (9km’s) to pick up a certificate by paying our motorbike driver $6. I’m not silly, I know the best way to get things done here!

This IS NOT a road in Nairobi

This IS NOT a road in Nairobi

My brain is in a fuzz. I thought at first it was the jetlag, but we beat that by going out for a 45 minute walk each day to lose the kilos we’ve put on. It wasn’t until last night that I clicked on what the problem really was. For months we’ve been used to the sun going down and getting dark about 8.45pm. It took us 6 weeks to get used to that, now it’s pitch dark by 7pm. I remember when we first came in 2012 we went through the same thing. I don’t like it and I will miss the option of getting out there after dinner and going out.

You can't get gluten free hamburger buns in Kenya

You can’t get gluten free hamburger buns in Kenya

At the end of it all, we chose to come and live here, so we have to get used to it all again. Trying to figure out Swahili, the locking of the car doors, the security checks and the unproductiveness of certain areas, not being able to get stuff where and when we want to.

But if we look at what we don’t have, we will miss out on some very cool things here. The ultra cheap fruit and veges which we can buy on the side of the road. Great friends we’ve made. Eating out at a reasonable price. Coffees Pete can afford.

No doubt we’ll do what everyone else does and ease back into life here again. Nairobi is where we are meant to be – it is home.

This Is No Holiday

We’ve been on the road for a month now and the biggest thing people say to us is ‘How’s your holiday going?’

This is no holiday, trust me.

Sure, we’re away from home for 8 weeks, so yes, it counts as an extended period of time. The recreation side of things is another thing all together.

The reason we came to New Zealand - the wedding of Hannah and Luke.

The reason we came to New Zealand – the wedding of Hannah and Luke.

The great thing is to catch up with many of the partners in our work, family and friends. We hadn’t planned to come away this year but our youngest daughter is about to be married, so we were coming.

If you’re spending $6,000 on flights, you certainly wouldn’t come for a couple of weeks.

Each weekend, we are in Auckland with our daughter and during the week we are visiting around the country. December is the worst time of year to fundraise so booking in group meetings is not just going to happen.

Ross & Beryl Shadbolt - Pete lived with them before we got married.

Ross & Beryl Shadbolt – Pete lived with them before we got married.

Weekends are full of shopping for clothes for the wedding, decorations for the wedding, going through the ceremony ideas for the wedding. Now we are getting closer it’s shopping for the household stuff and moving furniture into the apartment.

Since we are living off people’s donations, we have very little that we can financially contribute. However, we can offer practical help and advice.

As soon as Monday comes around we jump into the little Toyata we’ve been generously lent by the in-laws. Thankfully, we’ve been lent a fuel card for the month, so our petrol has been covered.

Pohutakawa trees. NZ is the only place you can see them.

Pohutakawa trees. NZ is the only place you can see them.

In some places we have back to back meetings, up to three a day. On Thursday we’ve squashed in 4. Today was the only day we haven’t had meetups with people or travelled.

No wonder we are tired, really tired.

Sleep when/where you can.

Sleep when/where you can.

What most people don’t realise is that this is part of work. Sure, we get to sleep in later but each day you’re telling people about what is happening in your part of the world. There’s still blogs to write, websites to update, fundraising campaigns to get going, emails to answer.

This is what they call ‘furlough’.

Liz with Don McDonell, someone who we've known for 20 years.

Liz with Don McDonell, someone who we’ve known for 20 years.

It’s not a holiday it’s a necessary part of keeping in touch with donors and putting a face to where their money goes. It reminds them that you are more than someone on a social networking site. You are human and you are grateful for their sacrifice.

Pete getting to see his ailing father.

Pete getting to see his ailing father.

It’s quite hard to let them know of the ever growing financial needs and the shrinking budget. You don’t want to seem ungrateful and that you need more. But that is the reality. The cost of living in East Africa is skyrocketing, while the income diminishes. Donors move to other countries, some just stop, others forget.

You also have to buy clothes and tools for the next 2 years. Pretty much everything is twice the price in Kenya so you have to outlay for what you will need. There are some things you just can’t get back home. For example, I bought a wooden clock for teaching time to kids – it cost a whopping $5. I’ve also got counters for using with a bingo game and Pete has picked up some chainsaw files. No point in having a chainsaw if you can’t sharpen it!

Speaking at the Tokoroa Elim Church about our work.

Speaking at the Tokoroa Elim Church about our work.

On the flip side though, catching up with people we haven’t seen, some for 15 years, is fantastic. We’ve eaten way too much food, stayed up too late too often and had time to hear what others have been up to.

Kevin & Jan Ahern shouting us out to a BIG breakfast.

Kevin & Jan Ahern shouting us out to a BIG breakfast.

So although it’s not a holiday – it’s still been lots of fun.

East to West

We’ve been in ‘the West’ for two weeks now. Kenya isn’t ‘the East’ but it is in that direction.

There is A LOT of freedom here than back in Nairobi. We haven’t locked our car doors when we get in. I’ve even put my handbag on my knee when travelling. You don’t get security checked at the shopping malls and can do uturns without worrying about getting pulled up by the police.

Butterfly House in Singapore

Butterfly House in Singapore

Pete is super excited because the roads have overhead lights, white lines on the road AND reflectors down the middle of the road. It makes driving at night really easy. The fact that there are hardly any cars on the road in comparison to Nairobi also makes a difference. Sometimes sitting at traffic lights is a pain but it sure makes everything run smoothly.

I’ve even worn my jandals/thongs/flipflops for 4 days in a row. In Kenya I get hassled because they should either be worn in the shower or around the house. Here in New Zealand it’s just what you do. The weather has been exceptional, much warmer than what we ever thought it would be. There’s nothing like kicking off your jandals and putting your toes in nice warm sand.

Pete with the sunflowers at the airport.

Pete with the sunflowers at the airport.

However, it’s not all wonderful. We knew it was going to be expensive to eat out here, but didn’t realise how much it would really be. In Nairobi we buy a bottle of water or Coke for around 60 cents, as apposed to $3.50 for the same item here. There is way more variety of gluten free food here and it is half the price of what we pay for back home.

We’re really lucky to have the use of our soon-to-be son-in-laws car, which saves us getting around on buses. Petrol is $2.07per litre in Tauranga, in Nairobi it was $1.36 – go figure that one!

Mt Maunganui

Mt Maunganui

The biggest difference so far is how moist it is here. I didn’t realise how dry it was in Kenya until we left. Sure, we are much closer to the ocean but overall it is less dry and very green. It might not seem much to you but you definitely feel the difference.

The fact that the houses have large windows, there’s very few gated communities and we even left the laundry out one night and it didn’t get stolen – all these still shock us.

Native plant of New Zealand

Native plant of New Zealand

Even though it’s been a couple of weeks we still can’t believe how light it is at 8.30 at night. In Nairobi it starts getting dark at 6.50pm and then it’s pitch dark by 7pm. That happens 365 days a year. We had these ideas of going for a walk at night because that’s one thing we miss but we are so busy visiting people it just hasn’t happened yet. We did get to put our toes in the freezing cold ocean once, here’s hoping for more.

Basically what we’re experiencing is reverse culture shock. When people come to Kenya they struggle with the differences, meanwhile we embrace them when we return to our ‘other home’. We know it’s only for a few more weeks but we are enjoying the variety of food, the green grass and the options of freedom. Yes we do miss the familiarity of our new homeland and the special friendships we have made there but also know to make the most of each moment here. flowers

 

Finally Taking A Break

This week we just passed our second year of completion in Kenya. It was a big goal for us and we’re preparing for even bigger and more impacting work in the next few years. We’ve got our visas until August next year but intend to stay as long as our visas get renewed. We’re on a humanitarian visa which is good because it’s much cheaper than a business one. The downside is that we can’t earn the much needed dollars to continue our work here.

Most people go ‘home’, that would be their other ‘home’ every few years. We’ve decided that this routine is not enough and you need to be continually raising the profile of your work and the money to go along with it.

The last time we were all together was 2012.

The last time we were all together was 2012.

Currently we are $1,000 short in our personal budget every month. That’s not including ministry costs. To give you an idea of rising costs, our electricity bill was 3,500 shillings when we arrived, it’s now up to 12,000. That’s the type of rising costs we see all the time in developing countries.

We’ve had an interesting two years. It certainly hasn’t been dull and boring that’s for sure! You’re always learning something new and have to continually grow bigger in your capacity to handle the challenges that come along. You make mistakes, you advance in what you’re doing, you make lots of friends and are constantly building the vision.

Now it’s time to take a break and recharge our batteries.

Looking forward to being in our old stomping grounds.

Looking forward to being in our old stomping grounds.

At the beginning of this year, if you asked me whether we would return to our home countries twice in 2014, I would’ve said no way. Earlier, Liz and I went back on a 7 week speaking tour. It meant at least 3 meetings a day, early mornings, late nights. It was great, but it was work. In those 7 weeks we had 3 days off.

Now, we’re returning to Australia for 2 days, New Zealand for a month and then back to Aussie for 9 days. The main reason is that our youngest daughter Hannah is getting married, so that’s a pretty good reason to go! This visit will be at a slower pace, catching up with our sponsors and just a couple of public speaking appointments. We even get two days at the beach at our friends holiday home.

We look forward to the beach and being able to walk around at night.

We look forward to the beach and being able to walk around at night.

 

But our main focus will be our daughter. It has been quite hard on her organising a wedding pretty much by herself. As her mother, it has been challenging not to be there for her. It will be the same when they start having babies in a couple of years. We won’t be there to share the experience with them, except via Skype. Hannah has already told me that I WILL be there for the birth of her children. I told her I can do any year except 2018, when we are driving around the whole of Africa (so plan it right you guys).

We're going to be in Sydney for NYE which is also Lizzies 25th birthday.

We’re going to be in Sydney for NYE which is also Lizzies 25th birthday.

 

While we would love to catch up with everyone, it is physically impossible. Normally we wouldn’t come back at this time of year because people are in holiday mode and are making the most of their Christmas vacation, which is totally understandable.

 

I will try and blog as much as possible when we’re away but from past experiences, I can tell you that accessing the internet in those countries isn’t as easy or cheap as here. What three of us spend in 3 months on phones in Kenya, will be the same as what one of us will spend in 1 month in NZ.

We intend to enjoy the beach and Summer weather as much as possible – our beach is 9 hours away! We also have a shopping list of things we just can’t get here, simple things like iron on patches. Most of all, we’re looking forward to sharing the stories about the wonderful young people we work with here.

We will be catching up with our Aussie grandparents in the country.

We will be catching up with our Aussie grandparents in the country.

 

Meanwhile, here’s our itinerary to date. If you’re in that city and we haven’t managed to contact you for a meetup, get a hold of me via Facebook, it’s the easiest way.

Nov 19 – 21 Sydney
Nov 21 – 23 Auckland
Nov 24 – 28 Tauranga
Nov 29 – 30 Auckland
Dec 1 – 3 Hamilton
Dec 4 – 5 Tokoroa
Dec 6 – 7 Auckland
Dec 8 – 9 Tauranga
Dec 10 – 11 Tokoroa
Dec 12 – 19 Auckland
Dec 20 – 21 Whangamata
Dec 22 – 23 Rotorua
Dec 24 – 28 Sydney
Dec 29 – 30 Moss Vale
Dec 31 – Jan 3 Sydney
Jan 4 – 6 Central Coast
Jan 7 – 9 Sydney

 

 

 

Why you SHOULD visit Kenya

I just want to come out and say it. The job of the media is not to tell the truth, their job is to sell newspapers. They capture a moment in time and then move on to the next big headline.

lensI’m not against telling what’s going on in the world, I just think there is an oversaturation of events that are available on our phones, laptops, over the radio, on TV and in newspapers. Social network sites are so rife with news that in places like Iraq Facebook is banned because ISIS were using it to spread their horror.

The only time Kenya seems to get into the global news is when there is a terrorist attack or governments put out travel alerts for this part of the world. As soon as something goes wrong, we end up getting messages from the West asking if we’re okay, even though the event happened 9 hours drive away.

So here, I’m going to give you some good reasons to actually come here.

1.Variety

There’s something for everyone. Surf, sand, cities, farms, restaurants from every nation, markets, malls and cultural shows. There’s swimming pools, ice rinks, IMAX and horse racing. Of course, Kenya is known for it’s wildlife with over 65 national parks, reserves, sanctuaries and marine parks to visit. Each has it’s own focus on particular animals. There’s even one animal park you can bike through without being eaten!

beach2. Opportunities

This is the volunteer capital in the world. Whatever skill you’ve got can be used to grow the skills of locals. You might not see playing soccer with kids as a big deal, but to them it is. There is great joy when a child you’ve been teaching actually able to read because you’ve spent a couple of weeks with them. Giving back to communities is the best thing you can do for a week of your life, but so is receiving. While most volunteers come with the intention of bringing about change, they come away feeling like the luckiest people in the world, and see that they are the ones who are changed.

coach3. Cost

If you’re flying from Australia or New Zealand air tickets can be pretty pricey, unless you take a slightly longer route. However, once you’re here it is relatively cheap to get around and as long as you stay in a nice guesthouse, your accommodation costs are low. Food is much cheaper than back at home and there is always a good variety of fruit. To eat out is a good option and there’s no lack of variety from budget to extreme. For example, you can have an all you can eat buffet, including dessert for $26. Or, you can have beef stew and rice for $2.60. Tourist pay a lot more than locals for entry into animal game parks. One national park costs tourists $90 while we as residents pay $10.

fruit4. Something different

Why go somewhere that is just like home? Not many people can say they went white water rafting or bungee jumping in Kenya, or flying in a balloon while thousands of wildebeests are below. How many people can say they went to a Masai village and met the cutest kids in the world? I bet your friends have never kissed a giraffe!

raft5. En-route

I always try to encourage people that if they are coming this far, to travel to other countries in this part of the world. Dubai is only 5 hours away, South Africa 6, London 8, Amsterdam 8, Egypt just under 5. Flying in between African countries is not that expensive either. To fly to Uganda return is $350 (USD). If time allows it why not explore as much as possible.

caseThe world is an amazing place, and Kenya is an exciting place to explore. It’s far more than you will ever see on the Discovery Channel. Why not come and see if for yourself!

 

 

A Coeliac in Kenya

In October 2007 I travelled for 9 days to Kenya, then returned back to Sydney. Three weeks later I travelled via the UK to Ghana for a whopping 3 days. Then in January 2008 I started getting night sweats and not feeling 100%. In February I got pain from what I thought was appendicitis, which abruptly stopped at 2pm. Nothing much for the remainder of the year except this sharp pain in my right side.

The doctor couldn’t put it down to anything in particular.

About a year later I was eating a chocolate Tim Tam biscuit and my belly swelled up to what made me look 6 months pregnant. Pete thought it was hilarious. After having tubes put in both ends of my body the doctors told me I was a coeliac. I didn’t even know what it was. It was a harsh blow to find out that I wasn’t allowed to eat anything with wheat in it. There went 50% of my diet.

timA few months later the ‘could it be appendicitis’ pain struck at 6 in the morning. Pete took me to hospital, they took the appendix out and then told me the pain wasn’t because of that. The appendix was fine. However, since then the pain in my right side which dogged me for years disappeared. It was the caecum that was causing all the problem, which was connected to me being allergic to gluten.

So here I am in Kenya, a coeliac, with about zero people knowing about it.

I’ve had an interesting 19 months trying to figure out what I can eat and what to avoid. The food labelling here is useless. It might say vinegar but not which type (I can’t have malt/brown vinegar). You ask someone at a restaurant about whether it has flour or gluten in it and you get a blank look.

One of the hardest things is when you go to someones house. The last thing I want to do is offend someone who has gone out of their way to prepare a meal for you to tell them that you can’t eat it. Once I ate a couple of sandwiches and it made me sick for 2 weeks. Bread is a big thing here, usually what someone has for breakfast. A few weeks ago we went to a co-workers house for ‘tea’, but it’s never just a cup of tea here, it’s a full meal. People go out of their way to make your stay nice. These guys had even borrowed from their neighbours a table and couch for us to sit on.

I’ve smartened up a lot and now take a ziplock bag of goodies with me. I also tell Pete to eat ‘for me’ so that it looks good. On Thursdays we travel an hour to a training farm for former streetboys. We have a staffroom and I usually make scrambled eggs for lunch.

Like I said, the hardest thing is the lack of labelling. Even herbs and spices have gluten in them. You only find out when you have to spend a lot of time on the toilet or have intense pain in your stomach to figure out not to get that brand.

We do have some health food shops in Nairobi called HealthyU. Because everything is imported, it’s really expensive. While today they might have gluten free bread mix, tomorrow there might be none. So, I buy multiples of what I need to get. Liz travels back to Australia every few months so she brings me back things I can’t get here.

The big one is chocolate. There is absolutely no chocolate here in the supermarket that doesn’t have gluten in it, not a bar. It’s a tragedy.

Not all chocolate has the same recipe

Not all chocolate has the same recipe

I get to miss out on chapatis (divine taste), bread, sweets, chocolate and mandazis. However, there is lots of fruit, veges, rice and meat I do get to eat. Yes, it’s hard when people in the office are cooking toast and that lovely baked bread smell goes through the room. However, I get to bring in home baked goodies that our guys have never seen.

Chapati before it is cooked.

Chapati before it is cooked.

I do a lot of home baking. When someone from Aussie comes to visit I always ask them to bring me gluten free flour. I use that for everything instead of normal flour. I just have to add Xanthum Gum and sometimes an extra egg to give it the fluffiness. I can buy gluten free cornflour here so use that for thickening things. And I always, always have a packet of Edmonds Custard Powder in the cupboard.

custardWhile it’s tough, it’s not life threatening. Much nicer to be healthy and feeling great.

About Money Matters

In light of what has occurred in the last few hours I thought I’d write my thoughts on giving online. If there is anything that will pull a person or organisation down is how they handle their finances.

I am sure all of us have received via email or social media a request for money for some need, or we have received a million dollars from some unknown relative. This week I’ve had someone offer our organisation $7,000 if we give $4,000 of it to another African organisation they have nominated. Also, an overzealous family member Facebooked a lot of our friends asking them to give money to help get Pete home to see his dad before he dies, and put the money in their own personal bank account.

So here goes:

1. Always Check the Spelling

It is more than obvious if the spelling, the grammar or their English is incorrect that you should just hit the delete button. If someone is asking for money they should at least have the decency to spell the words right.

 

2. Emotional Blackmail

I hate it when people post up photos from famine areas, use emotion to twist you into giving or give the ‘this is the last ditch effort’ type of ploy. If people feel to give, then let them do it.

 

3. Give Intelligently

Ask yourself ‘Can I afford to do this right this very second or will next week be better when I can give more?’ Find out more about the situation. Make sure your money gets to where it is meant to go and not in someone’s personal pocket (we call it lunch money here). Think about the way you can give that has the most impact.

 

4. Ask Questions

When will this money be spent, by whom, will I see the results, why do they need it right there and then? It’s okay to ask questions and if more people did they would be giving to areas that really bring about change.

 

5. Bank Accounts

Red flags go off if people ask me to give to their personal bank accounts. Where is the accountability and how will I be receipted? For us, we have a personal bank account in New Zealand that friends and family put money into to help keep us in Africa. That’s only because we haven’t set up a Trust there (yet). However, if it’s a business we have a partner trust people can give into and get a tax deductible receipt. In Australia, the US and the UK we have partner organisations who collect donations on our behalf and issue receipts.

Ensure everything is kept above board.

 

6. Ask the Person Involved Themselves

We’ve had some people who out of the kindness of their hearts asked for money on our behalf for personal costs. We became aware of it because a cousin sent me a message on Facebook telling us about it and did we know them. Hence, 3 hours later I am still cleaning up the fallout of that. Thankfully my cousin did that otherwise we would’ve been oblivious to it all and it really could’ve done some damage to our credibility. If you get a request from someone you think you know give them a call and ask them did they send it out or what is the best way they can help.

We want people to keep giving, no question about that one. However, we also don’t want to bring into disrepute the good work that volunteers around the world are doing. We have many friends who work with babies, children, the elderly and the special needs in countries some haven’t even heard of. Let’s keep supporting them because they really do need it. The vision is always bigger than the resources and while money doesn’t bring happiness it does help bring positive change to millions of people on our earth.